Haemoglobinopathies specialist nurse

The specialist nurse for haemoglobinopathies works with families and individuals with sickle cell disease, thalassemia and other haemoglobinopathies to achieve optimum health, prevent complications and reduce hospital admissions.

Haemoglobinopathies are a group of recessively inherited genetic conditions affecting the haemoglobin component of blood. They are caused by a genetic change in the haemoglobin.

What we offer

  • Sickle cell blood imagePartner testing for antenatal women who are carrier/trait status and counselling for couples found to be at risk.
  • Guidance and support for parents and carers throughout the process of diagnosis, planning care and liaising with other health professionals.
  • Home visits to offer support, encouragement and empowerment.
  • Health promotion advice to parents or carers whose children have been found to be carriers/trait.
  • Health care plans for children in nursery or school diagnosed with health needs that may impact on their wellbeing.
  • Attendance at health reviews with the paediatric consultant.
  • Assistance in the transition from paediatric care to adult care
  • Training sessions for various agencies, families and establishments to inform and educate attendees of children in their care
  • Information about benefits patients may be entitled to.
  • Community events in collaboration with voluntary agencies to raise awareness of the disorders

Please complete the referral form below and return to hrc.ccnt@nhs.net