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Multiple Sclerosis (MS) Nurse Specialists - Richmond

Our Multiple Sclerosis (MS) Specialist Nurses provide a specialist nursing service to anyone living with MS within the London Borough of Richmond.

Two nurses work part-time and are based within our Community Neuro-Rehab Team, which includes physiotherapists, occupational therapists, a dietician, and speech and language therapists.

The nurses provide specialist therapeutic and practical support to people with MS, their families and carers. The MS Specialist Nurses provide an essential link between the patient and other health and social care professionals, and take a pivotal role in co-ordinating services in the community.

Richmond’s MS Specialist Nurses are based in Richmond Rehabilitation Unit. 

They have specialist training in the management of multiple sclerosis and are linked into regional and national networks of the UK Multiple Sclerosis Specialist Nurse Association (UKMSSNA) to ensure an up to date knowledge of best practice in the field.

  • Jenny Richardson, Multiple Sclerosis Nurse Specialist (MSNS) works Monday, Tuesday, Wednesday each week. 
  • Joanna Smith , Multiple Sclerosis Nurse Specialist (MSNS) works Monday, Thursday, Friday each week.

The MS Specialist Nurses provide:

  • Support, advice and information for patients who have recently been diagnosed with MS
  • Ongoing support for patients with MS and their carers via telephone or direct contact
  • Specialist nursing assessment and advice on the management of MS, working closely with therapy colleagues within the Community Neuro-Rehab Team
  • Education, Initiation and ongoing Management of Disease Modifying Therapies jointly with Prescribing Centres. 
  • Links between community and hospital services
  • Case management for patients with complex needs
  • Links to other services supporting people with MS, making referrals when required
  • Education and training for health and social care professionals involved in MS.

 

Meet the team:

  • Jenny Richardson - Multiple Nurse Sclerosis Specialist
  • Joanna Smithl - Multiple Sclerosis Nurse Specialist   
  • Rachel Hurley-Love – MS Clinic Co-ordinator   
  • Christina Pettigrew - MS Administrator 
  • Wioletta Kironde - MS Administrator 
  • Kerstin Eikenberry - Volunteer Website editor

 

 Visit the following webpages for details about how to get in touch with our: Richmond Community Neuro-Rehab service; or our Continence team (adults)     

Information about home adaptations in Richmond can be found  by visiting the London Borough of Richmond's website.
 

Further Support:                

The MS Society Richmond branch

  • holds regular events for people with MS in Richmond as well as providing grants, transport, access to counselling and yoga.  
  • There is also a group for younger people with MS. 
  • The branch has a support officer who can provide personal support and assistance to anyone with MS. Visit the branch website or call 020 8542 1712 or 07905 099 080. 
  • runs a free, confidential helpline for anyone affected by MS, providing both information and emotional support. It is open Monday to Friday, 9am-9pm and available on 0808 800 8000 FREE or via email helpline@mssociety.org.uk

 

A wide range of useful information about MS can be found on the MS Society website, including information for the newly diagnosed, managing specific symptoms, exercise and MS, new drugs, applying for benefits, getting a Blue Badge and much more.


The MS Trust works to make a difference today for people living with MS by providing free, reliable information and by supporting the health professionals who work with them. 

Find out more about their services and how you can get involved at http://www.mstrust.org.uk   

Getting in touch with the MS Nurses:

  • If you have been diagnosed with MS and live in the borough of Richmond, you can ask your GP, neurologist or any other healthcare professional to refer you via our Single Point of Access (Richmond). Once you are known to the nurses you can contact them directly without going back through your GP.        

     

  • The MS Nurses will then get in touch and arrange to see you.        

     

  • Between appointments, you should get in touch with the MS Nurses if you are concerned about new symptoms you are experiencing; you think you may be having a relapse; you are finding it difficult to cope with any aspect of your MS; you need advice about medication; or you have a question about your MS.        

     

  • You should get in touch by calling the number in the ‘Contact us’ tab on this page.  However, please remember that your call may not be returned the same day.

 

  • Please note this is not an emergency service.  In an emergency please contact either your GP, NHS Direct, or call an ambulance. 

 

Contact details: 

The team is based at Richmond Rehabilitation Unit

Address:

Multiple Sclerosis Nursing Services
Richmond Rehabilitation Unit
22 Evelyn Road
Richmond
TW9 2TF

Direct Tel:  0208 614 7353 (for change of appointments and questions regarding your care)

Reception:   020 8614 7350

Email: msnurseservice@hrch.nhs.uk

Opening times: 

The service is available between Monday to Thursday each week from 9am – 3pm.


View Richmond Rehab Unit in a larger map

All referrals need to be completed on the relevant Single Point of Access referral form. 

Referral forms can then be either faxed or emailed across to the service: 

Email: hounslowandrichmond.spa@nhs.net 

Fax: 020 8487 171

Courses available

Fatigue Management 6 week course (2 hour sessions)
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call the MS Nurse and express your interest.

Getting to Grips with MS Course –at diagnosis
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call the MS Nurse and express your interest.

Symptom Management Courses
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call the MS Nurse and express your interest.
 

Balance Class 6 week Course
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call 02086147350 and express your interest

Exercise Class 6 week Course
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call 02086147350 and express your interest

Arm and Hand Group Group 6 weeks
If you are a new patient please ask to be referred through your GP, if you are an existing patient please call 02086147350 and express your interest 

Information available

MS Society- Paper and Electronic
http://www.mssociety.org.uk/ms-support

MS Trust – Paper and Electronic
http://www.mstrust.org.uk/publications/


Patient Information booklets for CNRT & MS Nursing Services, HRCH NHS Trust:       

Please email msnurseservice@hrch.nhs.uk or call 02086147353 if you would like any information regarding a particular aspect of your care or if you are caring for someone with MS.  If you are a health care professional the MS nurses are available for advice. 

General Compliments/Comments   

"Having a community ms nurse I feel has been most personal rather than at Charing Cross Hospital, where you do not see the ms nurse unless you make an appointment and having it at the distance it was very hard to get to."  

General Compliments/Comments

"Dear Ms Newman
I would like to share with you how valuable the support and action provided by MS Nurse Ruth Stross has been for me over the last few months.
With the onset of a new range of disease modifying drugs to help manage MS, which I suffer from, I was offered the opportunity to take a specific drug which can help reduce relapses but can also have some difficult and potentially dangerous side effects. 
I was unlucky and responded badly to it. Not scheduled to see the consultant for some time, I tried to make contact with Charing Cross Hospital to find out what to do. Ruth initiated communication with my consultant and enabled a necessary decision to be made about stopping the treatment. I recovered fairly rapidly and owe the management of this situation to Ruth. 
She has also written to the consultant to indicate that she can take over the conversation with me about any future treatments which he has agreed to.
This is of enormous benefit to me and has resulted in me feeling not only secure in any drug treatment decisions I make in the future but also very well supported for general management of all my symptoms.
As a teacher, I am aware of the precarious funding of so many public services these days so I wanted to put my support for this invaluable service in writing. 
Kind regards"

Symptom Management Course

"Just thought I would congratulate you on a good symptom management day.  It was a good day overall despite the few problems we encountered.  One of the patients who attended told Dr Mansour all about how great it was when he saw him in clinic yesterday.  So well done!"

Symptom Management Course

"Dear Sue and Ruth,

I just wanted to thank you again for inviting us yesterday. It was a great programme and a fantastic opportunity for us to meet with people. Our information seemed to be popular and so I hope people will find it useful. Well done on such a good event and thanks again.

Kind Regard,

Lee-Anne Dippenaar

Multiple Sclerosis Nurse"

General Compliments/Comments

"Dear Ruth,

Thank you for our session at Tudor House yesterday.  It was really nice to meet you and have such a long chat.  I felt a lot better afterwards."

Fatigue Management Course 

"Dear Ruth and Vicky, 

Thank you both so much for having me on the course. I have found it extremely beneficial. 

Best wishes,

General Compliments/Comments from external Organisations 

"I just wanted to thank you again for inviting us yesterday. It was a great programme and a fantastic opportunity for us to meet with people. Our information seemed to be popular and so I hope people will find it useful. 

Well done on such a good event and thanks again. 

Kind regards 

Jo 

Director of Fundraising and Marketing, MS Trust"

General Compliments/Comments from external Organisations

Hi Ruth

RE: MS Trust photography day in the Richmond Rehab Unit

Thanks again to you and all our team for hosting me and Paul on Weds – it was a great, educational and inspiring day for both of us I think, as well as being very useful for the Trust. I think all our staff should spend a day with a neuro/MS team!

Thanks

Stephen
Stephen Troussé
Multiple Sclerosis Trust